what is respite Respite care allows for short-term accommodation in a facility outside the home in which a loved one may be placed, providing temporary relief to those who are caring for family members.
It provides a break for parents/caregivers of children with persistent high health needs while also providing a positive experience for the child. The physical, emotional and financial consequences for the family of a high health needs child can be overwhelming without some support. Respite has been shown to help sustain family caregiver health and well-being, avoid or delay out-of-home placements, and reduce the likelihood of abuse and neglect while also helping sustain marriages.
Children with medical complexity (CMC) account for less than 1% of the pediatric population, yet consume about 32% of child health care spending, equating to $419 million annually. The CMC population have on average a median of 13 physicians from 6 distinct medical specialities, high home care service utilization and high hospital and readmission rates. Home care costs for children with multiple complex chronic conditions with technology assistance have costs 3.5 times higher than children with a single complex chronic condition without technology assistance.
As families navigate the system across multiple care providers and care settings, quality of care can be fragmented and at risk of poor care coordination. Addressing the continuum of care initiatives to improve their health outcomes and decrease costs is essential.